You Can Be Involved in Research Right Now, Wherever You Are

A few months ago I wrote a ‘publication explainer’ post on the PRioRiTy Study. That post focussed on this paper: Identifying trial recruitment uncertainties using a James Lind Alliance Priority Setting Partnership – the PRioRiTy (Prioritising Recruitment in Randomised Trials) study. Read that post here if you’re interested.

Anyway, back to this post; we are now in the midst of the PRioRiTy II Study. PRioRiTy I prioritised questions about recruitment of participants to trials so that we could provide focus for the research community. PRioRiTy II takes a similar approach, but this time we’re prioritising questions about retention of participants that have been recruited into trials. It makes sense if you think about it; there’s no point in figuring out how to effectively recruit participants into trials if they then go on to drop out later on – we need participants to be recruited and retained in order for trial results to be reliable and useful to patients, members of the public healthcare professionals, researchers and policymakers.

The method that we are using to conduct this project has been used lots of times by the James Lind Alliance (again, more information on that in the publication explainer post I mentioned earlier), and we’re currently in the middle of it.

A few months ago we did an initial scoping survey (I say we, I hadn’t actually joined the team at that point!), that survey generated lots of responses. Those responses were questions and statements about things that people want to know about retention – once this survey closed, I joined the team and worked on data analysis for some of the results.

That data analysis resulted in a list of questions that have now gone on to be included in the ‘interim prioritisation survey’. This is a survey that asks respondents to look at the 27 questions that we currently have, and pick the 10 questions that they think is most important.

If you are:

  • A person who has been asked to take part, or has taken part, in a randomised trial
  • A parent or carer of someone who has been asked to take part, or has taken part, in a randomised trial
  • A person who has taken part in aspects of randomised trials as a partner in the research (eg, helped to get the funding, been on a trial steering committee, commented on patient information such as leaflets, letters etc)
  • A health professional or any member of a research team whose work includes encouraging people to stay involved in randomised trials once they have agreed to take part
  • Someone who has designed, run, analysed, reported on or regulated (eg, ethics committees) randomised trials
  • Someone with experience of the methods of randomised trials (ie, how trials are done)

Then we’d love for you to spare a few minutes to complete that survey – take a look here.
For more information on the PRioRiTy II project, head to the Trial Forge website, and take a look at the video below.

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